- Advocate Fights ‘Ambient Despair’ In Assisted Living : NPR 090612
Martin Baybe: "The truth is, in the facility I am in, the administration [is] by and large wonderful people — wonderful people — but in many facilities they are not, and they have a top-down management system, which starts obviously with the owners, or stockholders, whichever the case may be, and they try and make you as compliant as possible, as quickly as possible. They don’t need any revolutions. They want to put on a good face for the public. I was driving with someone else about a mile away from where I live and I saw an ad, a large ad, for my facility and there was a couple dancing [in it]. And I said to myself, ‘If I stood outside my room for five years, I would never see a couple dancing in my facility.’ "
- A Room With A Grim View: The ‘Ambient Despair’ That Marks Life In Assisted Living
Martin Bayne’s article @Health_Affairs: After entering an assisted living facility at age fifty-three because of young-onset Parkinson’s, an observer-advocate contemplates the dire need for long-term care reform.
- The Feathered Flounder
Martin Bayne: "The Feathered Flounder offers original literary writing by authors who are 60 or older. Each quarterly issue contains short fiction, essays, interviews, and video by writers with original voices. Sometimes serious, silly, irreverent, and wild; sometimes heartbreaking, educative, inspiring—The Feathered Flounder aims to inspire, incite, and surprise.
Additionally, it strives to illuminate the universal path of aging … and beyond. Part fish and part bird, The Feathered Flounder is born in the imagination of those with the benefit of having accepted the unexpectedness of aging. This fish with feathers swims to our deepest depths and soars through the…"
- Wired For Culture | Ideas with Paul Kennedy | CBC Radio
[MW: Intrigued by concept of "cumulative cultural adaptation" & its implications for cultures of #disability]
Human beings have a unique evolutionary history. We are at the mercy of neither biology nor luck. We survive by learning from each other. Evolutionary biologist Mark Pagel tells us humans are successful because we are "wired for culture." | Wired For Culture: Origins of the Human Social Mind by Mark Pagel is published by Norton.
Re-Imagining AccessibilityRe-imagining accessibility through the transformations of culture -- particularly the transformative promise of accessible technology for people with disabilities -- is the work of the Fair Use Lab. What does Shepard Fairey’s Hope poster have to do with accessibility? Read more: Shape-Shifters in the Fair Use Lab [MiT6 2009]
Remix: Danger MouseWill DJ Danger Mouse become the Che Guevara of digital sampling? Consider the case for fair use made by The Grey Album.
Blind PhotographersIn the moment when Paul Strand photographed her surreptitiously on the street in New York, the social engineers who created a system for licensing beggars never imagined that a blind woman had culture or could make culture. She herself may not have imagined it. Paul Strand probably didn’t give her much credit for making culture, either. Read more: Curiosity & The Blind Photographer [MiT5 2007] See more on blind photographers.
Disability As PraxisI am a parent, homeowner, knowledge worker, and person with disabilities. Oppression is not my true word, but praxis is. In Paulo Freire’s transformative work, I find an affirmation deeper than ideology or political activism -- an affirmation of the dynamic role of disability in culture. I believe the daily praxis of making adaptations and negotiating accommodations represents a significant form of cultural production. Read Disability As Praxis.
ADA 20th AnniversaryOn its 20th anniversary, pundits will debate what the Americans with Disabilities Act has accomplished. I still believe what I said in a TV interview after the ADA signing ceremony in 1990. “The ADA will not end disability discrimination overnight. But in a nation governed by the rule of law, getting it in writing is the place to start.” So what is the ADA's legacy? A Generation of Problem-Solvers.