Tag Archives: public sphere

FDR and the Hidden Work of Disability


Mark Willis will present “FDR and the Hidden Work of Disability” at MiT8 (Media in Transition 8) at M.I.T. on May 4, 2013. Continue reading

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Mapping Controversies in Citizen Bioscience


“Narrative” – who owns it, who controls it, who disrupts it – was the holy grail of almost every argument at Media in Transition 7. After Marina Levina’s talk on Citizen Bioscience in the Age of New Media, I plunged passionately into a debate that seemed to be a reduction of individual vs. institutional narratives. I was alarmed by the notion that “citizen bioscientists” could conduct genetic research without the human protections oversight of the informed consent and institutional review board (IRB) process. To my surprise, I was defending Institutional Science, at least as far as it embraces the protection of human subjects in research. Even as I took on this role, I remembered something I wrote in the role of a disability rights activist in “Not This Pig.” Continue reading

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Listen to the Voices of Disability Discrimination


Most of the media coverage I heard on the ADA 20th anniversary represented the civil rights law as a landmark in American public life. There were dissenting views, of course. Someone hiding behind the name “fortressdayton” wasted little time in adding this comment to my op-ed piece on the Dayton Daily News Matter of Opinion blog. Disability discrimination is often hard to put your finger on, so I give “fortressdayton” credit for being unfiltered, if mean-spirited. Continue reading

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White House Celebrates 20th Anniversary of the Americans with Disabilities Act


President Obama and others speak at an event commemorating the 20th anniversary of the Americans with Disabilities Act. [Source: whitehose.gov]. This video is in the public domain. Read the transcript. Continue reading

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A ‘Public Sphere’ Argument for Accessibility


When I heard the word “readable” in the following quote from the Personal Democracy Forum, I immediately read into it “accessible” for blind readers. Via Eric Kuhn: TwitNotes from #PDF09: Andrew Rasiej:  Public should be redefined as being searchable and … Continue reading

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